Hundreds of Queenslanders ran through Brisbane to rally awareness and funds to help us cure SPG56
What an amazing day! We are still reeling from the absolute joy of Saturday’s incredible event….so many amazing people and so many smiling faces at the event where three Brisbane…
I fed my child’s replicated mini-brains so I can help find a cure for her genetic brain disease
Feeding your child is something every parent lovingly does. Feeding your child’s induced pluripotent stem cells, so they can grow up to be brain organoids? Not so common! Genetic Cures…
Celebrating Rare Disease Day across the world with Our Moon’s Mission: Genetic Cures for Kids.
What a wonderful month of global support we have felt as we’ve led towards today, Rare Disease Day! The Lead Up Throughout this month Tallulah’s uncle’s company Core4 Property Services…
Busking ‘Shoplifters’ Surprised Our Family and Raised $2K to Help Find a Cure for SPG56
An amazing story of community spirit and coincidence: We were walking back from the beach the other day and we were absolutely blown away by a surprise busking band at…
Tallulah’s gift to genetic research: A stem cell harvesting medical procedure that will forge our genetic research ahead and help find a cure for SPG56
Yesterday our beautiful Tallulah Moon underwent a minor but vital medical procedure that could ultimately help find a cure or treatment for sufferers of SPG56. Under general anaesthetic by Dr…
We are Genetic Cures for Kids: Into the Sunshine Coast spotlight to shine a light on rare diseases and find a cure for SPG56
Quiet Sunday mornings read a little differently now as a family stepping into the public eye. We are forging a new research foundation ahead. It’s called Genetic Cures for Kids…
Research institutes join forces to find a treatment for SPG56
In August 2020, the Whitrod family discovered their baby girl had a rare and progressive genetic disease called SPG56. They discovered how little doctors knew about this incurable disease and…
Lift Off: The heartfelt story of our journey to the research launchpad
Shock, denial and grief: this is what it is to become parents of a child with an incurable progressive disease. But then we turned that grief into acceptance. Today we’re…
