What an amazing day! We are still reeling from the absolute joy of Saturday’s incredible event….so many amazing people and so many smiling faces at the event where three Brisbane Businesses rallied hundreds of runners for a charity fun-run. Starting at Newstead in the rain, nothing could stop the army of support that then ran, … Read more
Feeding your child is something every parent lovingly does. Feeding your child’s induced pluripotent stem cells, so they can grow up to be brain organoids? Not so common! Genetic Cures for Kids is so grateful to the dedicated researchers at the Australian Institute for Bioengineering & Nanotechnology – AIBN for their phenomenal progress to date, … Read more
What a wonderful month of global support we have felt as we’ve led towards today, Rare Disease Day! The Lead Up Throughout this month Tallulah’s uncle’s company Core4 Property Services has been doubling donations to help #CureSPG56! This was beyond brilliant and such a fantastic way to raise awareness and love for Our Moon’s Mission: … Read more
An amazing story of community spirit and coincidence: We were walking back from the beach the other day and we were absolutely blown away by a surprise busking band at Tickle Park! This Coolum musical institution “The Shoplifters” were singing loud and proud, their guitar case was full, and then… they mentioned our names! These … Read more
Yesterday our beautiful Tallulah Moon underwent a minor but vital medical procedure that could ultimately help find a cure or treatment for sufferers of SPG56. Under general anaesthetic by Dr Pat See at Brisbane Private Hospital, ENT Surgeon Dr Chris Perry delicately harvested stem cells from the upper area of Tallulah’s nose- these are called … Read more
Quiet Sunday mornings read a little differently now as a family stepping into the public eye. We are forging a new research foundation ahead. It’s called Genetic Cures for Kids Inc – or GC4K- and we are funding research for rare disease, the first campaign being ‘Our Moon’s Mission’ to cure SPG56. Reading our own … Read more
