Chris, myself, our loving GC4K Board and Research Team at Our Moon’s Mission: Genetic Cures for Kids farewell the great and wonderful moustached man, Alan Mackay-Sim, with a deep sadness in our hearts.
Alan passed away in early 2023, and lived until then, a life like no other, helping so many.
Alan gave us a lifeline, when we as parents, were in our darkest hours: with a child with a rare progressive disease, and nobody could give us hope. Alan gave us hope in research, and opened the door to a world where research translates into the clinic: to helping sick people get better.
As an Australian of the year, he’d already been awarded for helping many people before us, and when he looked at our child’s situation, and our bid to help her and treat this disease, he said: “I think this is possible”. He committed to helping desperate parents, and helped us succeed to where we are today: with a great research team and a solid program focussed on finding a cure for SPG56.
Alan didn’t just give hope. He inspired. And he still does, for so many families, other research professionals and friends. He’ll keep doing this, long after life’s breath has closed out for him too soon.
This link takes you to a short tribute to Alan’s great life, written by ABC’s Janelle Miles.
We will miss you, Alan. We send our deepest regards to wonderful Lisa and family. Thank you for all your love and support.
Bless Alan, always. 
